In the final part of Dying
in the City of the Blues: Sickle Cell Anemia and the Politics of Race and
Health, Keith Wailoo further details sickle cell disease at its height in
the early 1970s and how it was portrayed in both the government and the media.
Wailoo notes that, “[a]s the malady became a national cultural symbol, many
more groups with their own agendas entered the discussion about what it signified,
reshaping the meaning of the disease both nationally and in cities like
Memphis.”[1]
With the disease being widely discussed in the media, the government, and groups
such as the Black Panther Party, as well as the militancy surrounding black
politics in the late 1960s into the early 1970s, “the malady seemed to illuminate
‘the race problem’ itself in 1970s America.”[2]
With sickle cell disease being widely discussed in the 1970s, what factors led
to its steep decline in national conversation in the late-20th
century into the new millennium? After finishing Wailoo’s book, it is seen that
the evolving War on Drugs and its effects on the African American community can
explain why sickle cell disease’s importance in national conversation steeply
declined.
As President Reagan intensified the War on Drugs in the
1980s, as well as his view of African American mothers on welfare to be “welfare
queens driving Cadillacs,”[3]
the prevailing narrative of drug-addicted African Americans looking for ways to
obtain drugs through the hospital emerged at the end of the century. In this
sense, then, the narrative surrounding sickle cell disease changed as well. While
the media portrayed African Americans suffering from the disease as innocent victims
in earlier decades, they became vilified in the 1980s; “[t]he new image of
sickle cell disease- an expensive, inner city, chronic illness in which
too-liberal pain management might actually produce
drug addicts- reflected the changing political landscape.”[4]
It is interesting to note, as well, that the visibility of sickle cell disease,
after its perception of the 1980s, slowly fizzled out in the 1990s; “[b]y the
end of the twentieth century,,, the attention paid to sickle cell disease
receded noticeably. Over time, the plight of sickles had been dragged into a broad
spectrum of clinical and social debates.”[5]
Overall, then, it is seen that the portrayal of sickle
cell disease in the United States changed each decade following its discovery. Originally
seen as a devastating disease that affected innocent African Americans to an excuse
for African Americans to demand more drugs from hospitals, Wailoo demonstrates
that “[w]herever there was a racial controversy, sickle cell anemia might be
evoked.”[6]
As the narrative of sickle cell disease changed throughout the 20th
century, though, the overall remains about pain treatment for African
Americans.
[1] Keith
Wailoo, Dying in the City of the Blues:
Sickle Cell Anemia and the Politics of Race and Health (Chapel Hill: The
University of North Carolina Press, 2001), 165.
[2] “Concern
with Urban Problems Spurs Interest in Sickle Cell Anemia,” New York Times, July 25, 1971 in Keith Wailoo’s, Dying in the City of the Blues: Sickle Cell Anemia
and the Politics of Race and Health (Chapel Hill: The University of North
Carolina Press, 2001), 166.
[3]
Ibid, 202.
[4]
Ibid, 204.
[5]
Ibid, 231.
[6]
Ibid, 231.
Good! But what should we make of this? What factors led to the broader shift in how SCA was imagined in US culture?
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